The White House Staff did an amazing job with the Vignettes this year. All 13 recipients interviews happened just prioress to the Medal Ceremony.
My personal blog reaction after the Medal Ceremony: http://janicelangbehn.com/2011/10/22/where-to-go-from-here/
David played Lisa and my holy union entrance song – and my favorite piece Pachelbel Canon (he kept it a surprise until a week ago). He has come such a long way in playing the viola. I am so very proud of him. Enjoy
This was the first TV interview just 3 hours after speaking with the president and while I fumbled for the words.. It is true that I believe it is not a Gay right but a Human right to decide who should be with you at the moment of death and what I had wanted to articulate but didn’t – was that no laws, or policies should define that for individuals. Say blood relations was not a good way of putting it and not how I have discussed this in the past. I am sorry if that hurt other families out there – that was not my intention – please remember I am a reluctant activist – and learning my way and still learning how to articulate myself quickly and clearly.
As I find the links to other videos I will post them.
a contrite holiday we really didn’t celebrate
though three years ago we were
packing for Miami and the boat of bliss
but really this sunday is the day
exactly now – 5pm in Miami
when I was on the phone with Jan B.
saying help me – they say I’m in an
“anti-gay city and state”
they had our legal papers and it didn’t matter
we waited, the kids and I in our matching outfits
in that tiny ugly old dirty waiting room
knowing in my soul that, today, 3yrs ago today
the day before Presidents’ day
would change my life more than any other
more than a birth or adoption or another
Today, 3yrs later – it’s Valentine’s day
the kids are blissfully unaware
no idea if they count days, months, anniversary’s like I do
I have to, it’s the only way to get
through – for me
so tomorrow on Presidents’ day at 10:45am – I will
be heading to UPS – the place of our beginning-
for writing class, at the moment
when my love lost her life, officially
thought the dates change by the year
and it’s ‘really’ the 19th but for me
it will always be Presidents’ day
Bought the kids Valentines goodies to distract myself
from the real truth of the day
On a day when our family celebrated Bob’s marriage to Jen
and couples were called to dance – it slammed me in the chest – I had no partner to dance with
and that brings me full circle and trying to understand and be at peace with Lisa’s Death without Dignity
Lisa – was restrained, unable to speak for herself while the kids and I waited behind a locked door for 8 hours to be with her
only to gain access when her Sister arrived. All because of What? Mr. Frederick’s statement I was in an “anti-gay city and state”.
My complaint to the commission that oversees hospital is concluded without even calling me – all just from a 2 paragraph email
Is that justice – How do I know that they knew the full story? And the investigation is sealed – So staff at JMH continue to practice
without so much as a reprimand. Some are allowed to read her chart nearly 3 years after the fact to rationalize and justify their action
have come out saying I was “irate” in the waiting room – curious since I never met this nurse and Mr. Frederick only saw me for 5 minutes right
after Lisa’s admission.
It’s all unspeakable and horrible for what happened to our family – allowing Lisa’s to die alone
So as the three year anniversary approaches – all I can ask is that you don’t forget her
that you make your voices heard so ALL families matter.
Take a Moment and write an email or call Jackson Memorial and tell them you are outraged, that our family deserves and apology
Write to the Public Trust of Miami-Dade that oversees the hospital – they have been conspicously silent during this tragedy
It’s time for them to answer to how we were treated – from the time Lisa was admitted to the time she was laid to rest.
I still can’t get her death certificate, she was listed as “single” so one stroke of a pen erased 18 years of committment we had
We can make a difference,
Will you help me?
The video says it all
I have uploaded Katie and David’s strings concerts. David plays in both the middle school orchestra – and they are amazing as well as Chamber’s Orchestra at Waldorf which is only 9 kids strong – where all practices are after school. Katie’s school did a horrible job in staging no one could see the kids.